Wisdom is the principal thing

We went to hospital (24th August) & waited for the conditioning chemotherapy, & waited & waited.  Then admitted to the ward....& waited some more.  I spoke to & consulted with the chief Neurology consultant & then met with my Haematology consultant.  The result of the neurology consult & further meetings between several Haematologists’s, was basically that the Neurology department feels there is not enough evidence to proceed, at this stage. 

We were given a choice of going ahead with transplant or wait for more evidence to appear on subsequent MRI's (regular MRI's to wait for a visual change in S1 nerve).  I expressed my distress at the whole event and what I felt had been a useless exercise, but have chosen to wait for change on the MRI and for all practioners at my new hospital to be in agreement, that I require a transplant.  My Neuro/Haem consultant's believe I have the disease in the area & that I will need a transplant @ the right time, However they also have concerns about whether my body can tolerate the levels of toxicities needed for the transplant.  The risk of death is higher for me, because I am/my bone marrow is currently still recovering from the last 3 rounds of systemic chemotherapy, which began in January/09.

So, we could have chosen against waiting, but I would rather have every doctor in line with a common opinion & all be positive that what we are doing is right.  I don't want to have this transplant, if it is only my choice to go forward and I am not backed up by a full hospital team.  

In the meantime, I must manage pain and an ever weakening R leg, until we find a solution....and hope, hope, hope & pray that my leg is not permanently damaged, as we wait. 

Will blog again when we have major news.