TRANSPLANT POSTPONED @ THE 11TH HOUR
Friday, 27 August 2010 18:36 | 
Written by Jodie Guerrero | 
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We went to hospital (24th August) & waited for the conditioning chemotherapy, & waited & waited. Then admitted to the ward....& waited some more. I spoke to & consulted with the chief Neurology consultant & then met with my Haematology consultant. The result of the neurology consult & further meetings between several Haematologists’s, was basically that the Neurology department feels there is not enough evidence to proceed, at this stage.
We were given a choice of going ahead with transplant or wait for more evidence to appear on subsequent MRI's (regular MRI's to wait for a visual change in S1 nerve). I expressed my distress at the whole event and what I felt had been a useless exercise, but have chosen to wait for change on the MRI and for all practioners at my new hospital to be in agreement, that I require a transplant. My Neuro/Haem consultant's believe I have the disease in the area & that I will need a transplant @ the right time, However they also have concerns about whether my body can tolerate the levels of toxicities needed for the transplant. The risk of death is higher for me, because I am/my bone marrow is currently still recovering from the last 3 rounds of systemic chemotherapy, which began in January/09.
So, we could have chosen against waiting, but I would rather have every doctor in line with a common opinion & all be positive that what we are doing is right. I don't want to have this transplant, if it is only my choice to go forward and I am not backed up by a full hospital team.
In the meantime, I must manage pain and an ever weakening R leg, until we find a solution....and hope, hope, hope & pray that my leg is not permanently damaged, as we wait.
Will blog again when we have major news.
Relationship breaking up?Tuesday, 24 August 2010 16:57 | Written by Alina Gabriela | | |
"I finally see that you're not worth my time and effort anymore!" How many of you have been told that as a relationship ended? I've had it a few times, and there's no difference between a normal relationship and a Christian relationship. I'm sure some of you will think 'whoa' that can't be true, but I am living proof of it. Just because someone believes and trusts in God somewhat, it does not mean they won't still have weaknesses, insecurities or that they won't choose to act the 'normal' way! Anyway, when I got told that encouraging (sarcasm) sentence by my ex, my instant reaction was to fight him, to prove my worth, to make him see differently. However, something (God) stopped me in my tracks and instead of fighting, I saw myself replying with "OK, I accept your judgment, you are right!" Now you would think that would please him, I am agreeing with him. Wrong! The next thing to come out from him was: " Wow, you have changed, where's the strong woman I fell for? Where's the one willing to stand up and fight her corner? Face me!" Of course I felt the sting a little but I didn't choose to show it. Not only I'm not worthy, now I'm also a weak wimp! I'm doing great so far in my character building! I replied with: "I don't feel like facing an already lost cause! What's the point in fighting, I've lost my worth in your eyes!" His reply was, "You've lost the best thing you've ever had in your life!" Read more... Add new comment
http://enhancing-still.co.uk/Monday, 09 August 2010 14:45 | Written by Alina Gabriela | | |
....This website is made... so that we all understand Jesus & God the way we are meant to. We keep getting him wrong. He isn't this snobby, stuck-up someone that just tries to take all our fun away. If it feels like that for you, then don't worry... keep reading.... Last Updated (Monday, 09 August 2010 14:49) |
Jodie needs your help!Thursday, 19 August 2010 18:00 | Written by Jodie Guerrero | | |
NEW notice on blog page: www.jodiesjourney.com/jodies_blog_01
Jodie recently got out of her new hospital after an infection/medical investigations and will soon be commencing strong lumbar puncture & systemic chemotherapy, prior to a Autologous Stem Cell Transplant/Rescue. The entire process may take up to 8 months or more and then recovery. This latest infection (caught from the kids) has highlighted a lingering huge need for Jodie & her health. Details about this special need are on the latest blog page. You may be able to help. www.jodiesjourney.com) "To save my leg and ultimately my life"Sunday, 08 August 2010 10:05 | Written by Jodie Guerrero | | |
(For those of you in Australia, tune into the new ABC News24 channel on free-to-air TV, on Friday night - August 13th @ 8.30pm or Saturday morning - August 14th @1.30am to see the original Australian story episode that introduced me to the remarkable work of Professor Gill and his PA research team in Lymphoma: called 'IN MY FATHERS FRIDGE'). Some of you may know already. I was admitted to the PA hospital on Wednesday, 4th August/10, due to a lingering chest infection....since having 1 day of IV anti-biotics, I'm feeling much better. Whilst I am in here, we will consult with some of the specialists, I am due to see and have another CSF Lumbar Puncture diagnostic test. I have spoken to professor Gill, after a clinical panel of doctors discussed my situation once again (11 of them)....in the end they were all in agreement that the scar tissue present on the CT/MRI on my sciatic nerve/S1 is most probably is not scar tissue at all, but probably some of the original disease, that was never fully removed. If this is the case. then, I have never been in remission at all. The team of doctors here at my new hospital are in full agreement that I require 6 Lumbar Puncture Chemotherapy doses, then 6 systemic strong chemotherapy treatments, followed by a stem cell rescue - using my own cells and further radiation to the area. This is probably all take at least 8 months. To save my leg and ultimately my life, we will be doing all possible with a large team of doctors to reverse the progression of this disease. Stay tuned....I will update frequently. (For those of you in Australia, tune into the new ABC News24 channel on free-to-air TV, on Friday night - August 13th @ 8.30pm or Saturday morning - August 14th @1.30am to see the original Australian story episode that introduced me to the remarkable work of Professor Gill and his PA research team in Lymphoma: called 'IN MY FATHERS FRIDGE'). Jodie Guerrero. Last Updated (Sunday, 08 August 2010 10:05) |
